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Annual Family Conferences

Angioma Alliance

Please join us for two days of presentations and conversations about cavernous angioma research and treatment. This meeting is happening concurrently with the International Scientific Meeting, and there will be a shared session and other opportunities to interact with the researchers. 

Find a full agenda at http://angioma.org/documents/DCPatientMeeting2019Agenda.pdf 

Click here for registration and hotel information: Angioma Alliance Conference 2019 Registration

Early registration is $70/person. After October 7, registration is $80/person. Onsite registration is $100/person.

Highlights include:

  • With the researchers, attend a joint keynote presentation by Dr. Issam Awad marking the 15th anniversary of the scientific meeting;
  • Hear presentations geared toward patients and their families from leading clinicians and researchers including Dr. Min Park, Dr. Mark Kahn, Diane Darcy, RD, Dr. Kimberly Foley, Dr. Amy Akers, Kristen Dahlem, RN, Tim Considine from Recursion Pharmaceuticals, Dr. Connie Lee, and other speakers to be announced;
  • View posters presenting recent, unpublished research findings;
  • Have an opportunity to meet Scientific Meeting attendees over lunch and at breaks; 
  • Meet other Angioma Alliance members and share stories and tools.

This is a unique opportunity to interact with the research community and to learn about the patient and family role in advancing the search for better treatments. Our International Scientific Meeting attracts every major research laboratory in the world, as well as many leading clinicians.

Angioma Alliance Canada

Angioma Alliance Canada hosts an annual family conference in Toronto.  For more information, please contact info@angioma.ca or visit their website at angioma.ca

Cavernoma Alliance UK

Cavernoma Alliance UK hosts an annual one-day Forum to bring together affected individuals, their families, and top European and American experts in cavernoma. Since 2007, CAUK has hosted this forum every year during the month of June. 

Cavernoma Alliance UK CaverHubs

Cavernoma Alliance UK hosts many "CaverHubs" during the year. These are half-day programs throughout the UK that feature a distinguished speaker from the local area. To find the schedule of CaverHubs or more information about CAUK's annual forum, please contact Ian Stuart at info@cavernoma.org.uk or visit their website at cavernoma.org.uk

CCM Scientific Meeting

Angioma Alliance hosts an annual CCM Scientific Meeting. The meeting is open to all interested scientists. This meeting is not open to patients. For more information, please contact Connie Lee at info@Angioma.org.