Annual Family Conferences

Angioma Alliance regularly holds family conferences that bring together cavernous angioma experts and affected individuals. Our conferences feature presentations, small group discussions, and opportunities for socializing. The conferences are held in locations around the country to allow as many individuals as possible to attend.  


University of New Mexico CCM Family Conference

April 8, 2017, 8:00 - 4:30 pm

University of New Mexico

UNM Domenici Center Albuquerque, NM

Light Breakfast Served at 8:00 AM and Lunch Served at 12:00 PM Presentations in the Morning with Opportunities for Research Participation in the Afternoon 
Open to those affected by CCM.
Questions:  505-272-3194 or  Email to marybartlett@salud.unm.edu

Cincinnati, OH Family Conference

May 8, 2017

More info coming soon!  Reach out to info@angioma.org for details!

More info coming soon on other family conferences!

Past conferences:

September 24, 2016: Durham, NC.  Speakers included Dr. Doug Marchuk, CCM researcher from the Duke University, Angioma Alliance Chief Scientific Officer, Dr. Amy Akers, and Angioma Alliance President and CEO, Dr. Connie Lee. The morning conference concluded with an awareness walk at the Sarah B. Duke Gardens on campus.

November 2016: Washington DC

May 2016: Cincinnati, OH

June 2015: Oak Brook, IL - Please see the Angioma Alliance YouTube channel for videos.

March 2011: Dallas, TX

April 2009: San Francisco, CA

November 2007: Washington, DC

June 2006: Santa Fe, NM

June 2005: Baltimore, MD

2004: Chicago, IL

Angioma Alliance Canada

Angioma Alliance Canada hosts an annual family conference in Ontario.  For more information, please contact info@angioma.ca or visit their website at angioma.ca

Cavernoma Alliance UK

Cavernoma Alliance UK hosts an annual one-day Forum to bring together affected individuals, their families, and top European and American experts in cavernoma. Since 2007, CAUK has hosted this forum every year during the month of June. June 24th, 2017 will be the 11th anniversary of the meeting, which will be held in York for the first time. This event is free to all and includes lunch and tea.

Cavernoma Alliance UK CaverHubs

Cavernoma Alliance UK hosts many "CaverHubs" during the year. These are half-day programs throughout the UK that feature a distinguished speaker from the local area. To find the schedule of CaverHubs or more information about CAUK's annual forum, please contact Ian Stuart at info@cavernoma.org.uk or visit their website at cavernoma.org.uk


Pathobiology of CCM Scientific Workshop

Angioma Alliance hosts an annual Pathobiology of CCM Scientific Workshop.The meeting is open to all interested scientists. This meeting is not open to patients. For more information, please contact Connie Lee at info@Angioma.org.