Building community is an essential part of the mission of Angioma Alliance. Angioma Alliance offers a number of opportunities for getting to know others with cavernous angioma in order to share information and support.
We host a Community Forum that has a bulletin board format. This is the most active section of our website. On the Community Forum, individuals describe their experiences, share their questions, and even organize face-to-face get-togethers. The forum is available in English, Spanish and Portuguese. The Community Forum Instructions page is a step-by-step guidebook for those who are new to us.
We have developed a Peer Support program for new individuals to obtain one-on-one information and support from folks who have been with Angioma Alliance for some time. Our members are able to submit their cavernous angioma stories in English, Spanish, and Portuguese on the site. This allows visitors to read about other’s experiences without looking through the forum or list server archives. Choose Member Stories from the menu to read these stories and learn more about submitting your own.
Finally, we provide links to social networking sites that host pages for Angioma Alliance and to YouTube for videos about cavernous angioma.