International Member Organizations

Our Facebook page



For Australian members

On Facebook - a group that was started by Australians and has grown to be international: Cavernoma Support Group


For Members in Belgium

Vascular Anomaly Patient Association: VASCAPA


For Brazilian Members

Visit the Brazilian website:  http://www.cavernoma.org.br/

Brazilian Facebook page: https://www.facebook.com/Aliancacavernomabrasil


For Canadian Members

Visit Angioma Alliance Canada: http://angioma.ca/ 

Canadian Facebook: http://www.facebook.com/AngiomaAllianceCanada


For European Members (especially where no country group exists)

On Facebook:  Europe - Cavernous Angioma Support Group


For French Members

Association sur les Cavernomes Cérébraux: http://association-cavernome-cerebral.e-monsite.com/

Facebook discussion group: La cavernomatose...maladie rare 


For German Members

Visit the German information website: http://cavernom.de/ 


For Indian Members

Facebook discussion groups: https://www.facebook.com/groups/CavernousAngiomaAllianceIndia/  


For Irish Members

On Facebook: Cavernoma Alliance Ireland


For Italian Members

ANACC ONLUS (l'associazione nazionale angioma cavernoso cerebrale): www.anacconlus.org

Facebook: https://www.facebook.com/AngiomaCavernosoCerebraleLaCommunity/ 

CCM Italia: http://www.ccmitalia.unito.it/ 



For Latin America Members

On Facebook: Angioma Alliance Latinoamerica


For Members in the Philippines

On Facebook: Cavernoma Support Group Philippines


For South African Members

On Facebook: Living with Cavernoma South Africa


For Spanish Members

Asociación Española de Cavernomas:

Web: www.cavernomas.org

Facebook: https://www.facebook.com/cavernomas/

For Swedish Members

Cavernost Angioma Sverige (CASE)

Facebook: https://www.facebook.com/cavernostangiomsverige.case/

For UK Members

Visit Cavernoma Alliance UK: http://www.cavernoma.org.uk/



Updated 2017.Sept.5