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For Professionals

It is our mission to inform, support, and mobilize those affected by cavernous angioma and drive research for better treatments and a cure. We do this by developing and executing strategic, creative, high-return interventions as a model for rare diseases.

In keeping with this vision, Angioma Alliance supports the community of health professionals and researchers by developing shared resources, facilitating study recruitment, and creating a community & scientific network.

  1. Angioma Alliance curates a Biorepository of CCM lesion tissue, matched constitutional DNA and clinical data. These resources are available to accredited institutions to help our researchers find better treatments and possible cures for this illness. 
  2. We have developed a web-based patient registry that collects self-reported clinical data and that is updated quarterly. This communication tool provides an avenue for researchers to advertise studies that are seeking participants. To learn more, please contact us at coordinator@angioma.org
  3. Our annual Cerebral Cavernous Malformations Scientific Meeting that brings together the premier scientific teams from around the globe to discuss their latest research in an open, friendly, and relatively informal atmosphere. This Meeting is not open to the public. It is held in the Washington DC area each November.