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Global Genes Grant Funds New Mexico Project!

 


Angioma Alliance is pleased to announce support from Global Genes for partial funding of the New Mexico Engagement Project! 

Global Genes, whose mission is to eliminate the challenges of rare disease, developed the RARE Patient Impact Grant Program in order to make a tangible difference in the lives of patients and caregivers affected by rare disease. Grantees were chosen through a competitive application and review process and Angioma Alliance was selected as a top applicant.

The New Mexico Engagement Project, funded by Global Genes and the Julian Grace Foundation, will help the under-served Hispanic population at risk for CCM in New Mexico, which hosts the largest population of families affected in the world.

Specifically, the one-year grant from Global Genes will partially fund the work of a Genealogist and the expenses incurred by the New Mexico Genealogical Society.  This work will further determine the extensive family of those affected with the defective gene, which will guide local outreach to increase proper diagnosis, medical treatment and clinical trial participation.

Angioma Alliance gratefully acknowledges the tremendous gift of support in helping those affected by CCM in New Mexico and for helping to find a treatment and cure for those affected everywhere.

2/13/17