Kentucky Angioma Community Alliance

Community Alliance

There is not yet a formal Kentucky Community Alliance, but we would love to know if you are interested in joining others to form one!

Visit our Angioma Community Alliance page to learn more about how you can meet others in your area, provide mutual support, organize events, and raise awareness. We need 5 people to get a Community Alliance off the ground. Likely, we already know a few interested members near you! Please contact Stephanie Alband at salband@angioma.org to let her know you are interested in participating.

In the meantime, please request to join our Angioma Alliance Great Lakes/Northern Plains Facebook Group for peer support and more information about local resources.

Upcoming Events near Kentucky

A fundraising and awareness event and a patient conference will be held for Angioma Alliance on Monday, August 13, 2018, as the Reds take on the Indians.

Please join us! There will be over 30,000 fans in the stands and millions more watching at home who will be exposed to cavernous angioma and Angioma Alliance for the first time that evening.

Visit our Reds Event page for more information.

Centers of Excellence

Angioma Alliance has recognized Cincinnati Children's Hospital Medical Center as a Center of Excellence. Some adult patients are followed at CCHMC as well.

For a complete list of Center of Excellence faculty, please visit our Center of Excellence page.

Cincinnati Children's Hospital Medical Center

Medical Director: Dr. Sudhakar Vadivelu

Central Scheduling: (513) 636-4726 


Last updated 4.5.18