It is our mission to inform, support, and mobilize those affected by cavernous angioma and drive research for better treatments and a cure. We do this by developing and executing strategic, creative, high-return interventions as a model for rare diseases.


A permanent cure for CCM


  1. Facilitate and participate in cavernous angioma research to achieve a complete understanding of the disease and facilitate clinical drug trials and other treatment improvements.
  2. Provide disease and resource information to educate and improve the lives of people affected by cavernous angioma, caregivers, health professionals, researchers, policymakers, the media, and the general public.
  3. Foster and promote a caring community to provide support.                                                     
  4. Get people involved in advocacy and active participation toward a cure.
  5. Build and sustain a broad base of funding sources to adequately support our mission and goals.


Last updated 11/12/2017