Text Size: SMALL  LARGE

Mayo Clinic Hospital - St. Mary's Campus, Rochester, MN

Recognized as a Center of Excellence on 10/16/2017, Public Announcement

Local Airbnb Options to Supplement Mayo's Housing list 

Phone:  (507) 538-1036

Address: 200 First Street SW, Rochester MN 55905

Number of Outpatient CCM appointments annually: 75

Number of Inpatient CCM patient days annually: not known

Number of CCM research publications, 2012-2017: 12

Faculty

Medical Director: Kelly Flemming, MD, Department of Neurology

Co-Director: Giuseppe Lanzino, MD, Department of Neurosurgery

Additional Cerebrovascular Neurologists:

      Lindsy Williams, MD

      Robert D. Brown, Jr., MD

Geneticist:  Ralitza Gavrilova, MD

Neuroradiologist: Waleed Brinjikji, MD

Nurse Coordinators: Deb Herzig and Jody Covall

Additional Faculty:

      Michael Link, MD, Skull Base Neurosurgery

      Jimmy Fulgham, MD, Cerebrovascular Neurology

      James Klaas, MD, Cerebrovascular Neurology

      Irene Meissner, MD, Cerebrovascular Neurology

      Jon Graff-Radford, MD, Cerebrovascular Neurology

      Fredric Meyer, MD, Cerebrovascular Neurology

 

Summary of Mayo Clinic Research Program

Our main research interest is aimed at trying to understand the natural history of CCM and what medications, medical history, lifestyle factors, and activities influence lesion activity.  Natural history refers to what happens to people when there is no intervention, specifically, how many people with CCM bleed if surgery is not recommended or possible.  To date, there is no modifiable risk factor for CCM which leaves patients anxious and feeling a lack of control.  There are a number of concerns from patients that certain medications (e.g., blood thinners), medical conditions (concussion, pregnancy), or activities (weightlifting) influence CCM activity.  Thus, we are enrolling patients into a prospective cohort study in an attempt to answer these questions that are important to patients.  We review the medical record of each patient enrolled, ask them to fill out an initial survey, interview them when needed, and send yearly follow up questionnaires.  Over time, we are seeking to have over 250 patients, each with 3-5 years of follow up to help answer these questions.  We have currently (as of 12/27/2016) enrolled 125 over 2 years.  

Another interest for which we are currently seeking funding is to assess the quality of life in patients with brainstem cavernous malformations.  The goal would be to 1) validate a quality of life questionnaire; 2) determine the short and long-term quality of life in patients with and without surgery; 3) understand what drives quality of life in these particular patients.  This information would provide patients with important information to base decisions on whether to have surgery or to observe their cavernous malformation.  

Patient Education includes a dedicated web page for CCM and a CCM-specific educational packet given to each patient.

Medical Provider Education includes Grand Rounds, dissemination of the Angioma Alliance Clinical Care Consensus Guidelines, and inclusion of CCM in medical school training.

 

Last updated 6.26.2018