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Online Support and Information Resources

Facebook

Main Group
We have a very active, large community on Facebook. Even if you do nothing else on Facebook, please consider joining our private Angioma Alliance Facebook Group to give and receive support from other Angioma Alliance members. You must request to join.

Community Alliance Groups
In addition to our main Facebook group, each Community Alliance hosts a Facebook group. Click on your state on our Community Alliance map to find the group nearest you.

Regional Groups
If there is no Community Alliance near you, we also host regional groups :

Northeast      Mid-Atlantic      Southeast      Great Lakes/Central Plains      Southwest                   

Rocky Mountains      Pacific

Subgroups
We host subgroups:

Parents      Members with Brainstem Lesions      Members with Spinal Lesions

International
Many of our international affiliates host Facebook groups. Links to these can be found on our International Cavernoma Groups page

 

Zoom Support Groups

We also host a variety of cavernous angioma support groups via videoconference on Zoom. You will find the schedule on our Upcoming Events page.  If there is interest, we can create other groups as well. Please let us know your interests at info@angioma.org.

Many of our Community Alliances also host local online and in-person support groups and meetups.

 

Information on Social Media

Angioma Alliance uses social media to share the latest information about research and our activities. Please follow us on:

Facebook

Twitter

Instagram

YouTube

LinkedIn

 

 

Updated 3.29.20