The Angioma Alliance website is adding a Stories section. As a permanent part of the site, we would like to publish the experiences that you have had with cavernous angioma. Sharing and reading stories can be a way to give or get support, to share information, and to express feelings.
If you have been affected by cavernous angioma personally or as a family member or friend, please consider submitting your experiences for our site. Your story may include whatever aspects of the illness experience you feel have been important to you. This is not limited to, but could include the story of your surgery experiences, symptoms and diagnosis, recovery and disability experiences, parenting or spouse experiences, workplace or community issues, or health care provider/patient relationships.
We will publish the stories as they are submitted, editing for spelling but not for grammar. We will contact you if we feel we need to edit for medical accuracy, and will not do so without your permission.
To submit your story, please email it with your name to stories@AngiomaAlliance.org. Your story will be published with your name. Please let us know whether you would like your email address to appear with your story. This would allow readers to make contact with you with questions or to share their experiences. You may include a digital picture of yourself, if you like. Also, please consider sending periodic updates to your story to storyupdate@AngiomaAlliance.org. These will be added to your original story with the date of submission. You will be able to find your story on the Stories page under the Community main menu selection.
We encourage international submissions and can accept stories written in Spanish. If you are writing from outside of the US, it would be helpful for you to include your country somewhere in your narrative. Spanish stories will remain in their original language and we also may translate the story for inclusion on our English page.
Thanks so much for your willingness to participate!