Text Size: SMALL  LARGE

Upcoming Events

photo by Gary Colgan

Below is a list of upcoming events.  Don't see anything in your area?  Reach out to us to discuss organizing something in your community!

University of New Mexico CCM Family Conference
April 8, 2017, 8:00 - 4:30 pm
University of New Mexico
UNM Domenici Center Albuquerque, NM

Light Breakfast Served at 8:00 AM and Lunch Served at 12:00 PM Presentations in the Morning with Opportunities for Research Participation in the Afternoon 
Open to those affected by CCM.
Questions:  505-272-3194 or  Email to marybartlett@salud.unm.edu

 

Capitol Hill Lobby Day
May 2, 2017
Washington, DC

More details coming soon!

 

Cavernous Angioma Night at the Great American Ballpark
May 8, 2017
Cincinnati, OH

Join us as the Reds face the Yankees, and we spread awareness of Cavernous Angioma to a sold-out ballpark and the viewing audience at home.

Get Involved!

  • Purchase tickets to the game and attend!  You can purchase individual tickets here
  • Sell tickets to your friends and family!  Reach out to Stephanie at salband@angioma.org and sell tickets using this form!
  • Sponsor the event!  More info is here!
  • Donate directly to the event here!

More details are here!

 

Chili Cook-Off
June 3, 2017
Okeen Park
Dyersburgh, TN

Come on out, eat and compete in this fundraiser to benefit the Angioma Alliance!  Hosted by Sommer Nowlin & family.  $25 to compete for Chili Cook Off Champ, $10 all you can eat!  Register hereDownload the flyer here!

 
 
New York Mets Fundraiser
June 4, 2017
Citi Field

Join us as the Mets face the Pirates, and we raise funds and spread awareness of Cavernous Angioma.

Get Involved!

  • Purchase tickets to the game and attend!  You can purchase individual tickets here
  • Sell tickets to your friends and family!  Reach out to Stephanie at salband@angioma.org and sell tickets using this form!
  • Sponsor the event!  More info is here!
  • Donate directly to the event here!

Download the flyer here!

Cavernous Angioma Awareness Month
Month of June

June is International Cavernous Angioma Awareness Month. Do your friends and family really understand what a cavernous angioma is? Would you like to help us educate the world? This month is your opportunity to share the information you have with anyone who is interested. 

1. Create a short video about your CCM story and why you are involved in raising awareness. (Make sure your phone is horizontal). 
2. Post on social media and #cureforccm and #brainsshouldntbleed and share with media in your community.
You can also make a donation online at www.angioma.org/donate!

Learn how to get involved here! 

Angioma Alliance Walk Honoring Florence Joyner
Sunday, September 24, 2017
Flo Jo Park
22760 Olympiad Rd., Mission Viejo, CA
REGISTER TODAY!

Join us for this Walk & 5K to raise funds and awareness for those affected by cavernous angioma.  We will honor Florence Joyner who passed away from complications related to CCM at Flo Jo Park!  Mary Joyner, daughter of Flo Jo & past America’s Got Talent contestant will sing the National Anthem! Raise or donate $35 and you will receive a t-shirt!  Download a copy of the flyer here!  Download sponsorship opportunities here

Rare Disease Day
Held Last Tuesday of February

Help Angioma Alliance raise awareness on for Rare Disease Day!

1. Create a short video about your CCM story and why you are involved in raising awareness. (Make sure your phone is horizontal). 
2. Post on social media and #cureforccm and #rarediseaseday. 
You can also make a donation online at www.angioma.org/donate!

Let's stand up and be heard!  You can find more info here!