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Upcoming Events

photo by Gary Colgan

Below is a list of upcoming events.  Don't see anything in your area?  Reach out to us to discuss organizing something in your community!

University of New Mexico CCM Family Conference
April 8, 2017, 8:00 - 4:30 pm
University of New Mexico
UNM Domenici Center Albuquerque, NM

Light Breakfast Served at 8:00 AM and Lunch Served at 12:00 PM Presentations in the Morning with Opportunities for Research Participation in the Afternoon 
Open to those affected by CCM.
Questions:  505-272-3194 or  Email to marybartlett@salud.unm.edu

 

Capitol Hill Lobby Day
May 2, 2017
Washington, DC

More details coming soon!

 

Cavernous Angioma Night at the Great American Ballpark
May 8, 2017
Cincinnati, OH

Join us as the Reds face the Yankees, and we spread awareness of Cavernous Angioma to a sold-out ballpark and the viewing audience at home.

Get Involved!

  • Purchase tickets to the game and attend!  You can purchase individual tickets here
  • Sell tickets to your friends and family!  Reach out to Stephanie at salband@angioma.org and sell tickets using this form!
  • Sponsor the event!  More info is here!
  • Donate directly to the event here!

More details are here!


Cavernous Angioma Awareness Month
Month of June

June is International Cavernous Angioma Awareness Month. Do your friends and family really understand what a cavernous angioma is? Would you like to help us educate the world? This month is your opportunity to share the information you have with anyone who is interested. 

1. Create a short video about your CCM story and why you are involved in raising awareness. (Make sure your phone is horizontal). 
2. Post on social media and #cureforccm and #brainsshouldntbleed and share with media in your community.
You can also make a donation online at www.angioma.org/donate!

Learn how to get involved here! 

 

Rare Disease Day
Held Last Tuesday of February

Help Angioma Alliance raise awareness on for Rare Disease Day!

1. Create a short video about your CCM story and why you are involved in raising awareness. (Make sure your phone is horizontal). 
2. Post on social media and #cureforccm and #rarediseaseday. 
You can also make a donation online at www.angioma.org/donate!

Let's stand up and be heard!  You can find more info here!